Lacy was born in November of 2008. She was our third child, and appeared just as healthy as her two sisters. Three weeks later, our lives changed forever. We got a call that Lacy had tested positive for Cystic Fibrosis. It was devastating that she could be so normal and healthy on the outside, but in her tiny body she was carrying a genetic disease that clogs her lungs with mucous and blocks her from digesting food. We began giving her enzymes to digest her food and learned as much as we could about Cystic Fibrosis. Her doctors told us that they had came a long way with treatments, and to treat Lacy like a normal little girl, with a few exceptions, and a few modifications. She would need twice as many calories as most in order to avoid colds and stomach bugs, exercise to clear her lungs, and breathing treatments daily. We prayed and prayed for God to keep her safe and we also agreed to make our lives healthier so hers would be also. We started running and then had some friends help us start a 5K, and the Race for Lace began.
Lacy needs to run to clear her lungs, and we need to raise money to find a cure for her. It began as a small 5K with big dreams. In the past 4 years it has grown from 150 people raising $3,000 to last year over 1000 people raising $52,000! We have had such support from our community and are hoping to keep growing and raising money until a cure is found.
Lucas was 18 months old when he was diagnosed with Cystic Fibrosis. At the time, our family wasn’t sure what it was and how it could affect Lucas. Lucas has endured 14 sinus surgeries and a surgery to implant a feeding tube in his stomach. He has had the feeding tube since the fifth grade, and uses it to receive additional nutrition through night-time feedings. Lucas takes anywhere from 35-40 pills a day to maintain his health and has at least three breathing treatments with chest physical therapy each day. He is very active in school, running track, taking honors and dual-enrollment courses, and participating in STEM. He is a member of the Anchor and Key Clubs, and a member of the National Honor Society. He works hard to maintain a 4.0 GPA and keep his health up. Lucas does let not his disease get in the way of his dream job as an anesthesiologist. He is working hard just like any other kid to achieve his dreams.
Elizabeth is 11 months old and was diagnosed with Cystic Fibrosis when she was a baby, thanks to the newborn screening test. She takes multiple prescriptions and breathing treatments daily as well as daily chest therapy with a vest. We are praying and hoping for a cure for our sweet princess.
Logan loves to play soccer, go to the park, go to the beach, go deep sea fishing, and play at the playground. Logan has dreams of becoming a firefighter and an astronaut.
Taylor Nelson’s Story
Taylor Nelson achieved one of his lifelong goals when he graduated with the Class of 2012 at Crestview High School. Less than a week later, he died of complications from cystic fibrosis.